You have a lovely family. May I ask where in Italy your family is originally from? My husband and his family (including my sister-in-law Marisa, who is Rosie's mom) are from Maierato, a small town in Calabria, and Marisa's husband is from another small town about fifteen miles away. I ask because I'm wondering if mutations in the GAN gene are more common in people from that particular part of Italy, and if it might be worth doing some investigating to see if there are or have been any other GAN patients there.
Thanks Mary. Look forward to speaking to you. Im sure you will be able to give me a lot of guidance and wisdom as we will be meeting alot of challenges that you have conquered before us. Roz
Hi Mary,
We are all well - thanks for asking. How are you and your family? Tell everyone that we said hi. Its been a while since I've been on here and it's good to see that there are a few new members. The GAN community is growing fast.
Take care. Luv Mandy xx
Hello
I thought i might leave a comment and ask if you have heard of USANA health sciences?
I have been taking there suppliments and have found theyhave really helped me. I have also had no sleep apnea since taking them, i use to have sivere sleep apnea. hope to here from you
Azzie McLean
Hi Mary,
Hope u and ur family are well. I love this website. Its such a comfort knowing that there are other GAN families out there within easy reach. I just wish this was around years ago when our kids were younger.
Luv Mandy xxx
"Donate what you Can to cure GAN."
Mary Pizzurro's Comments
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I'm so sorry it took me so long to respond!
You have a lovely family. May I ask where in Italy your family is originally from? My husband and his family (including my sister-in-law Marisa, who is Rosie's mom) are from Maierato, a small town in Calabria, and Marisa's husband is from another small town about fifteen miles away. I ask because I'm wondering if mutations in the GAN gene are more common in people from that particular part of Italy, and if it might be worth doing some investigating to see if there are or have been any other GAN patients there.
We are all well - thanks for asking. How are you and your family? Tell everyone that we said hi. Its been a while since I've been on here and it's good to see that there are a few new members. The GAN community is growing fast.
Take care. Luv Mandy xx
I thought i might leave a comment and ask if you have heard of USANA health sciences?
I have been taking there suppliments and have found theyhave really helped me. I have also had no sleep apnea since taking them, i use to have sivere sleep apnea. hope to here from you
Azzie McLean
Hope u and ur family are well. I love this website. Its such a comfort knowing that there are other GAN families out there within easy reach. I just wish this was around years ago when our kids were younger.
Luv Mandy xxx
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