Hi Melissa. Lori Sames here, from Hannah's Hope Fund (Hannah's Mom). I hope you are well. How is Alan? Did Dr. Kevin Flanigan, Utah, do Alan's gene sequencing to see what type of GAN mutation he has? If so, please email me his mutation. Also, would you ask Alan's mother if it's ok if we use some of the photos you placed in this forum for a slideshow we're putting together to play at fundraisers? Please send me an email at:
lorisames@yahoo.com Take Care Melissa! We're working hard to try to have a treatment to save these precious lives. thank you, Lori Sames
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lorisames@yahoo.com Take Care Melissa! We're working hard to try to have a treatment to save these precious lives. thank you, Lori Sames