Giant Axonal Neuropathy

"Donate what you Can to cure GAN."

Mary Pizzurro
  • 47, Female
  • Tampa, FL
  • United States
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June 28
Mary Pizzurro updated their profile
June 26
June 3
Mary Pizzurro and Roslyn are now friends
May 25
March 22

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At 10:59pm on June 28, 2009, Rebecca Holton said…
Hi Mary,

I'm so sorry it took me so long to respond!

You have a lovely family. May I ask where in Italy your family is originally from? My husband and his family (including my sister-in-law Marisa, who is Rosie's mom) are from Maierato, a small town in Calabria, and Marisa's husband is from another small town about fifteen miles away. I ask because I'm wondering if mutations in the GAN gene are more common in people from that particular part of Italy, and if it might be worth doing some investigating to see if there are or have been any other GAN patients there.
At 5:28pm on August 29, 2008, Gigi said…
thanks Mary, he is our angel.
At 4:54am on August 28, 2008, Roslyn said…
Thanks Mary. Look forward to speaking to you. Im sure you will be able to give me a lot of guidance and wisdom as we will be meeting alot of challenges that you have conquered before us. Roz
At 1:25am on August 2, 2008, Gigi said…
Thank you Mary, it's been a long two years in getting our son diagnosed.
At 9:22pm on July 3, 2008, Susan said…
Happy birthday Mike!
At 9:22pm on July 3, 2008, Susan said…
Mary, Tell your sons that they are very handsome! They look like a lot of fun!
At 5:44pm on June 22, 2008, Mandy McKay said…
Hi Mary,
We are all well - thanks for asking. How are you and your family? Tell everyone that we said hi. Its been a while since I've been on here and it's good to see that there are a few new members. The GAN community is growing fast.
Take care. Luv Mandy xx
At 3:37pm on June 19, 2008, Renee Spears said…
Thanks for asking. I have two brothers and four sisters...no children of my own. I'm the only one with GAN.
At 12:12pm on June 17, 2008, Renee Spears said…
Which of your sons is on a vent? What's the easiest way for me to contact your sons? Tell them both hello.
At 4:07am on May 22, 2008, Azwhayn McLean said…
azwhayn@hotmail.com

Profile Information

About Me
Parent of GAN Child
About Me:
I am the mother of two affected young men with GAN. Mike is now 26 and Joe is 23. I also have two daughters. Mike and Joe were diagnosed when they were 8 and 5 years old. We live in Tampa, Florida. My email address is marypizzurro@yahoo.com
Website:
http://www.caringbridge.org/visit/pizzurro

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Mary Pizzurro

Happy Mother's Day - A Poem by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit.

This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. H… Continue

Posted on May 7, 2008 at 11:03pm — 2 Comments

 
 

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