"Donate what you Can to cure GAN."
Best buddies.
Tanya and Julie are here with their orthopedic surgeon, Dr. Lawton, and their wound care nurse, Diane Gregroire.
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Comment by Lori Sames on June 10, 2009 at 12:00am -
hello. It's Lori Sames here. I regret that I never find the time to visit the Forum and see who is new. Magaen usually fills me in when a new GAN family finds us. I wasn't aware of you until just now. Please tell me about Tanya and Julie. Please email me at lorisames@yahoo.com and tell me
1) Can we use the photos you placed on this website in a slideshow that's being put together to show at fundraisers?
2) How old are they, and I assume they are sisters?
3) Have they had their GAN gene sequenced to learn what type of mutation they have?
4) Have the had any seizures and are they cognitively intact?
5) Did either of them develop scoliosis?
6) At what age did symtoms first present?
7) at what age did they become wheelchair bound?
8) Is speech impaired? Breathing? Swallowing?
thank you. The best way to stay in touch with me is through email at the above mentioned address, but please keep visiting this website. We're working tirelessly to find a treatment for GAN. I'm glad you found us, Lori Sames cell: 518-275-5359
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