Giant Axonal Neuropathy

"Donate what you Can to cure GAN."

Discussion Forum (8)

Discussions Replies Latest Activity
Matt Sames

Hope for a Million Fund Drive

For those of you who haven't heard, we have a tremendous opportunity that we have to take advantage of now. Warren Buffet's sister, Doris...

Started by Matt Sames

0 Oct 12
ammeygadley

I had chemo for breast cancer and now have neuropathy in my feet and legs. What can be done?

I had chemotherapy for breast cancer three years ago. I have been on Femara since. I am now suffering from neuropathy in my feet and legs...

Started by ammeygadley

0 Oct 6
Rebecca Holton

Writing

My husband's niece, Rosie, will be 21 in July. Over the past couple of years, her ability to write by hand has diminished because her fin...

Started by Rebecca Holton

1 Jun 30
Reply by Gigi
Magaen Bates

June 2009 - Need information from GAN families!

Hi Everyone, In order for anyone to participate in any eventual clinical trial, their mutation analysis must be performed. We need to kn...

Started by Magaen Bates

0 Jun 3
Renee Spears

FREE TIME FOR PEOPLE WITH LIMITED MOVEMENT

I am wheelchair bound and have very little if any movement of my arms. I can only move one hand, and not very well. I've been trying to t...

Started by Renee Spears

2 May 26
Reply by Laurie Rae
Matt Sames

Change your homepage and raise money for Hannah's Hope!

It's easy. Just go to Internet Options, and change your default homepage to "www.goodsearch.com", and click on "Apply". When the goodsear...

Started by Matt Sames

0 Dec. 28, 2008
Gigi

Oprah Winfrey

Hello everyone, I would like to request an important favor from all of you. I would like for you to send your story about GAN to Oprah Wi...

Started by Gigi

0 Sep. 24, 2008
Magaen Bates

GAN - gene sequencing / mutation analysis

Hi everyone. It is very important that every GAN patient have gene sequencing / mutation analysis done. There are two doctors that perf...

Started by Magaen Bates

3 Jul. 30, 2008
Reply by Gigi

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