Giant Axonal Neuropathy

"Donate what you Can to cure GAN."

Parents and patients with Giant Axonal Neuropathy may use this forum to discuss their experiences and share triumphs and challenges.

 

Latest Activity

Gigi replied to Rebecca Holton's discussion 'Writing'June 30
Hello Rebecca, I am the mother of a 6yr old boy with GAN (Ethan). Ethan is having those issues currently with his feet and his hand strength is diminished as well. His OT therapist made him a weight bearing custom hand splint to keep his fingers ...
Rebecca Holton added a discussionJune 28
My husband's niece, Rosie, will be 21 in July. Over the past couple of years, her ability to write by hand has diminished because her fingers have become so tightly curled, and she's quite sad about this. Are there any exercises that a GAN patient...
Mary Pizzurro updated their profileJune 26
Magaen Bates updated their profileJune 25
Sanskruthi (Sanju) Anantha is now a member of Giant Axonal NeuropathyJune 25

Events

Forum

Rebecca Holton

Writing 1 Reply

Started by Rebecca Holton. Last reply by Gigi Jun 30.

Magaen Bates

June 2009 - Need information from GAN families!

Started by Magaen Bates Jun 3.

Renee Spears

FREE TIME FOR PEOPLE WITH LIMITED MOVEMENT 2 Replies

Started by Renee Spears. Last reply by Laurie Rae May 26.

 
 

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